Hassendorf

Extremely delayed on entries / busy busy, moderately

...preperation preperation. (H) - no.

WELL

To be well. Interesting.

I have been waiting a while for tonight to come. CCSVI Information Session. Like I don't have enough right?... wrong - with the pase this is going, new information is spilled by the hour it seems. This session is brought to us by Direct-MS. I am thankful that RW is coming along, heaven knows I can't describe things very well; too much emotion about it to make full sense on a face to face basis. I am truely hoping that facebook's data is incorrect on the "attending guest" list... 20 people, not very many invited - its facebook - I do believe that people have other means of finding out information about important events that affect their lives. Regardless - it seats 900 people; I am there for more than one person, my whole family to be specific. Mom was ecstatic to know I was going, speaking to her through the phone is seemed as if she was so fuckin proud, which in turn, made me proud - not just for myself but for her too. And considering the new events that have taken place since my last blog... she SHOULD be proud of herself.

As of last week(ish)...

Journey to be less weak(ish)

Fate did this. That could be all I need to say, sufficient for me but would have the rest of you (most of you) wondering what the fuck I am blabbering about.

I am unsure if I previously described how a person finds out if they have blockages in their veins that drain the brain... to assume that I haven't - a person 100% needs to get an MRV (Magnetic Resonance Venography) this shows abonormal blood vessels, also called Stenosis. It is also recommended to get a sonogram (ultrasound) to see which way the blood is flowing... if there is a blockage in the external or internal jugular; the blood flow will be turned back into your brain causing iron deposits (now called CCSVI - FYI). It's extremely smart to get an MRI done as well - it's nice (or fucking disgusting) to know what new/progressed damages are in your brain... what is being most affected, etc.

Mom goes to Montreal on June 26th to get all of these scans done. And thank FUCKING GOD she did it when she did because they just annouced LITERALLY today that they are stopping all venagraph scans (the most important one) for people with MS. FUCKING BULLSHIT. They received a letter from Canadian Health stating the closure of this "procedure." Now I am assuming it's stirctly for MS patience because people who even have severe headaches get MRV's done. CROCK OF SHIT! FUCK YOU CANADA, not sorry - fuck you. It's damn good that they will still take previous oppointments booked before this assinine letter. Damn good. Fuckers.

With all the research that I've spewed at Mom in this last month she had sent an e-mail a couple weeks ago to the Euromedic Centre in Katowice, Poland. She gave her name, brief medical history and symptoms... within two days, TWO DAYS - they called her back and she is on the waiting list for 2011. W.O.M is fucking powerful... to have a waiting list spanning to 2011 is catastrophic considering the 'liberation treatment' only takes 4-6 days, that includes leaving home country to returning to home country.

"Everything just fell into place"

Mom said this to me the other day when she told me the news. She had been hesitant on what to do; to spend the money, take the risk, spend the money, take the time, spend the money, spend the money, spend the money. A good friend of hers from Estevan - Doug, who also has MS and they have collaberated on ideas, experiences, and advice with MS, getting stem cells, where to go, etc. Doug had began his liberation treatment search about 2 weeks before mom did... he had e-mailed the exact same place in Poland and has yet, to this day, heard back. Its sad... but when mom found out within two days that she was on that list - she knew it was meant to be. Dad whiped away all hesitation...

"It's worth it, Becky."

What a great fucking man.

Fate